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Completed Research
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Completed Research Information about the research projects listed can be obtained by contacting the researchers. These research projects have been undertaken with assistance from the NSW Department of Ageing, Disability and Home Care. However the information and views contained in these studies do not necessarily, or at all, reflect the views or information held by the Department of Ageing, Disability and Home Care, the NSW Government or the Minister for Ageing, and Minister for Disability Services.
| Project: |
Therapy Services in the Disability Sector: Literature Review |
| Principal Researcher: |
Prof. Anita Bundy |
| Institution: |
The University of Sydney
Faculty of Health Sciences |
| Completion Date: |
January 2008 |
| Description: |
This report presents an overview of research and practice literature on therapy (speech pathology [SP], physiotherapy [PT], and occupational therapy [OT]), for:
- Children with a disability
- Adults with a congenital or developmental disability |
| Report: |
Therapy Services in the Disability Sector: Literature Review |
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| Project: |
CALD Dementia Strategic Model: Literature Review, Report, Model |
| Principal Researcher: |
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| Institution: |
Cultural & Idigenious Research Centre Australia |
| Completion Date: |
April 2008 |
| Description: |
The research focused on three target communities - Italian, Vietnamese and Chinese communities in NSW and involved a literature review and field work.
Consultation took place with people with dementia from CALD backgrounds, carers/family of people with dementia, CALD service providers and community based organisations and mainstream service providers and community based organisations.
Information from the literature review and field work was used to develop a strategic model of dementia care in CALD communities. Information available through the research about the Italian, Chinese and Vietnamese communities was applied to the model to assist in planning dementia service delivery to those CALD communities. |
| Report: |
CALD Dementia Strategic Model Report |
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| Project: |
Good Practice in Administration: A Guide for non government organisations in the HACC sector. |
| Principal Researcher: |
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| Institution: |
BSR Solutions |
| Completion Date: |
February 2008 |
| Description: |
This project developed The Good Practice in Administration Guide which presents an anthology of case studies highlighting 'good practice' administrative procedures and models among HACC organizations in the Hunter Region. The Guide includes a review of case studies with particular emphasis on the success of identified practices/models, and 'key learnings' that may be helpful for other HACC Non-Government Organisations (NGOs).
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| Report: |
Good Practice in Administration: A Guide for HACC NGOs |
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| Project: |
HACC Service Models for Younger Onset Dementia & People with Dementia and Behaviours of Concern Part 2: Issues for Aboriginal and Torres Strait Islander People and People from Culturally and Linguistically Diverse Backgrounds. |
| Principal Researcher: |
Carrie Hayter, Carol Vale and Merilyn Alt |
| Institution: |
Alt Beatty Consulting |
| Completion Date: |
February 2008 |
| Description: |
This report presents findings of consultations with Aboriginal and Torres Strait Islander People and People from Culturally and Linguistically Diverse Backgrounds in the Metro North Region of Sydney. The consultations were held to assess the cultural appropriateness and relevance of recommendations of the report, Appropriate HACC Service Models for People with Younger Onset Dementia & People with Dementia and Behaviours of Concern.
The findings draw on consultations with HACC service providers, consumer representatives and other stakeholders and include a brief literature review.
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| Report: |
HACC Service Models for Younger Onset Dementia & People with Dementia and Behaviours of Concern Part 2: Issues for Aboriginal and Torres Strait Islander People and People from Culturally and Linguistically Diverse Backgrounds. |
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| Project: |
How much disability is long term? |
| Principal Researcher: |
Associate Professor Ian Cameron |
| Institution: |
Royal Ryde Rehabilitation Centre Sydney |
| Completion Date: |
February 2008 |
| Description: |
The research followed a small sample of clients of a community nursing service, assessed their level of disability when entering the service and tracked their level of disability after three months. The project examined predictors of long-term disability and extent of disability of this group of clients. |
| Report: |
Older people with age-related disabilities living at home: health and support service implications |
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| Project: |
Screening people with an Intellectual Disability for Dementia |
| Principal Researcher: |
Centre for Developmental Disability Studies |
| Contact: |
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| Completion Date: |
May 2007 |
| Description: |
This project provides a summary of research findings on dementia screening and diagnosis in people with an intellectual disability. |
| Report: |
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| Project: |
Measuring the Impact of the Managing Client Health Policy on clients in DADHC Funded Services |
| Principal Researcher: |
Centre for Developmental Disability Studies |
| Contact: |
seetad@med.usyd.edu.au |
| Completion Date: |
May 2007 |
| Description: |
This project researched and developed tools for the collection of data on policies, procedures and health indicators in people with developmental disability supported by DADHC funded services. |
| Report: |
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| Project: |
Human service workers and parents with a disability working cooperatively in the best interest of the child |
| Principal Researcher: |
Dr David McConnell |
| Institution: |
University of Sydney |
| Contact: |
d.mcconnell@fhs.usyd.edu.au |
| Completion Date: |
July 2006 |
| Description: |
The project investigated ways in which human service workers can work cooperatively with parents with a disability to achieve the best outcome for children. An ARC Linkage project. |
| Report: |
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| Project: |
Diverse strategies for diverse carers: the cultural context of family carers in NSW |
| Principal Researcher: |
Beatriz Cardona, Dr Sharon Chalmers and Dr Brett Neilson |
| Institution: |
Centre for Cultural Research, University of Western Sydney |
| Contact: |
s.chalmers@uws.edu.au |
| Completion Date: |
June 2006 |
| Description: |
The project investigated the impact of cultural factors on the caring experience, and the use of services by carers from culturally and linguistically diverse backgrounds. |
| Report: |
Diverse strategies for diverse carers: the cultural context of family carers in NSW |
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| Project: |
The occupational performance of children who require behaviour support: an exploration of functional performance in the context of family life |
| Principal Researcher: |
Lucinda Mora |
| Institution: |
University of Sydney |
| Contact: |
lucinda@lovedthanlost.net |
| Completion Date: |
May 2006 |
| Description: |
The project explored and described the function of eight young children with developmental delay and behaviour support needs, in the context of the family. |
| Report: |
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| Project: |
Development of NSW HACC MDS DATA cubes |
| Principal Researcher: |
Jim Hegarty, Chief Information Officer |
| Institution: |
Information Unit, Department of Ageing, Disability and Home Care |
| Contact: |
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| Completion Date: |
February 2006 |
| Description: |
Improved availability of HACC service delivery data to regional service development and planning staff. |
| Report: |
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Back to top |
| Project: |
Classification and costing study of NSW ATLAS, Post School Options and Day Programs |
| Principal Researcher: |
Professor Kathy Eagar |
| Institution: |
University of Wollongong |
| Contact: |
keagar@uow.edu.au |
| Completion Date: |
February 2006 |
| Description: |
The project examined the relationship between ATLAS, Post School Options and Day Program consumer characteristics and the cost of services provided to them. |
| Report: |
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| Project: |
Early Intervention and Family Disability Support |
| Principal Researcher: |
Professor Trevor Parmenter |
| Institution: |
Centre for Developmental Disability Studies, University of Sydney |
| Contact: |
trevorp@med.usyd.edu.au |
| Completion Date: |
January 2006 |
| Description: |
Evidence based investigation of six service pilots originally set up to explore services for supporting people with a disability. |
| Report: |
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| Project: |
Access to mainstream HACC service by culturally and linguistically diverse communities in Albury-Wodonga |
| Principal Researcher: |
Dr Gary Musselwhite, Dr Wendy Bowles and Mr Bill Anscombe |
| Institution: |
Centre for Rural Social Research, Charles Sturt University |
| Contact: |
Ph: 6933 2778 |
| Completion Date: |
2005 |
| Description: |
The project identifies the HACC service needs of the CALD communities within Albury/Wodonga and the surrounding rural townships (within the Hume, Corowa, Culcairn and Holbrook Local Government Areas). |
| Report: |
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| Project: |
Financial security, self provision, service needs and costs: projecting the care needs and circumstances of older Australians at a detailed regional level to 2020 |
| Principal Researcher: |
Dr Laurie Brown, |
| Institution: |
National Centre for Social and Economic Modelling (NATSEM), University of Canberra |
| Contact: |
laurie.brown@natsem.canberra.edu.au |
| Completion Date: |
November 2005 |
| Description: |
The development of a microsimulation model to estimate the need for care, at a statistical local area level, amongst older people in NSW. An Australian Research Council Linkage project. |
| Report: |
Development of CareMod/05 |
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Back to top |
| Project: |
Respite Models for Children under Seven Years With Challenging Behaviour |
| Principal Researcher: |
Greta Ridley, Jacqueline Roberts and Dr Roger Stancliffe |
| Institution: |
Centre for Developmental Disability Studies, University of Sydney |
| Contact: |
rogerst@med.usyd.edu.au |
| Completion Date: |
November 2005 |
| Description: |
The project investigated appropriate and effective models of respite for children under seven years of age with challenging behaviour. |
| Report: |
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| Project: |
Transient Aboriginal Client Research Project |
| Principal Researcher: |
Ellen and Stuart Davies-Meehan, Key Insights Pty Ltd |
| Institution: |
Lifestyle Solutions (Australia) Ltd |
| Contact: |
david@lifestylesolutions.org.au |
| Completion Date: |
September 2005 |
| Description: |
Investigated service pathways and access to services by transient Aboriginal clients temporarily in the Hunter and Central Coast area, and the impact of these clients on HACC funded services. |
| Report: |
Transient Aboriginal Client Research Project |
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| Project: |
Australian Implementation and Evaluation of Active Support |
| Principal Researcher: |
Dr Roger Stancliffe |
| Institution: |
Centre for Developmental Disability Studies, University of Sydney |
| Contact: |
rogerst@med.usyd.edu.au |
| Completion Date: |
September 2005 |
| Description: |
The project evaluated the trial of the UK 's Active Support Model in six DADHC group homes. |
| Report: |
Australian Implementation and Evaluation of Active Support |
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| Project: |
Client Participation in the Individual Planning Process |
| Principal Researcher: |
Kay Tiernay |
| Institution: |
Centre for Developmental Disability Studies, University of Sydney |
| Contact: |
rogerst@med.usyd.edu.au |
| Completion Date: |
February 2005 |
| Description: |
The literature review examines the variety of barriers that lead to the exclusion of clients with intellectual disability from the individual planning process. The review provides information on ways of increasing client participation, examining interventions focusing on communication, preference assessment, opportunities for choice and participation in meaningful activity in the context of staff management, training and supervision. |
| Report: |
Client Participation in the Individual Planning Process |
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| Project: |
Physical Activity Guidelines |
| Principal Researcher: |
Roger Stancliffe |
| Institution: |
Centre for Developmental Disability Studies, University of Sydney |
| Contact: |
rogerst@med.usyd.edu.au |
| Completion Date: |
January 2005 |
| Description: |
This project aimed to develop Guidelines for promoting regular physical activity for people with physical and intellectual disabilities. |
| Report: |
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| Project: |
Review of Positive Behaviour Support |
| Principal Researcher: |
Michele Wiese, Roger Stancliffe and Bronwyn Hemsley |
| Institution: |
Centre for Developmental Disability Studies, University of Sydney |
| Contact: |
mwiese@med.usyd.edu.au |
| Completion Date: |
January 2005 |
| Description: |
The project reviewed available literature on positive behaviour support programs for families with a child with a disability, with a view to identifying a preferred approach that may be implemented across NSW. To guide the review, a set of evaluation benchmarks was developed, based on both national and international literature. The evaluation benchmarks used included best practices in designing positive behavior support programs for families, implementation processes, and outcomes for child and family. |
| Report: |
Positive Behaviours Support |
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| Project: |
HACC Unit Cost Benchmarking Project |
| Principal Researcher: |
Richard Stock |
| Institution: |
Australian Healthcare Associates |
| Contact: |
www.ahaconsulting.com.au/haccunitcost.html |
| Completion Date: |
January 2005 |
| Description: |
This project provided information to assist with the process of updating and refining the HACC unit costing model by undertaking an extensive survey of HACC providers and service types. This has provided information on cost drivers in the HACC program for the Department and service providers. |
| Report: |
HACC NSW Unit Cost Benchmarking Study 2005 |
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| Project: |
Innovative Models of Community Support for People with High and Complex Support Needs |
| Principal Researcher: |
Dr Keith R. McVilly |
| Institution: |
Centre for Developmental Disability Studies, University of Sydney |
| Contact: |
kmcvilly@med.usyd.edu.au |
| Completion Date: |
January 2005 |
| Description: |
The project describes 21 different models of support for people with high and complex needs, including specific facilities, services and service systems from other jurisdictions throughout Australia and from overseas. The project synthesizes the features of these models and proposes key elements of a comprehensive, integrated service system. |
| Report: |
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| Project: |
Face and affect processing in children with Williams/Down Syndrome |
| Principal Researcher: |
Melanie Porter |
| Institution: |
Macquarie University |
| Contact: |
mporter@maccs.mq.edu.au |
| Completion Date: |
December 2004 |
| Description: |
The project investigated face and emotional processing in people with Down Syndrome, Autism and William Syndrome. |
| Report: |
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| Project: |
Management of Acute Epilepsy |
| Principal Researcher: |
Seeta Durvasula |
| Institution: |
Centre for Developmental Disability Studies, University of Sydney |
| Contact: |
seetad@med.usyd.edu.au |
| Completion Date: |
November 2004 |
| Description: |
A literature review on the management of acute epilepsy. |
| Report: |
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| Project: |
Sudden and Unexplained Death in Epilepsy |
| Principal Researcher: |
Seeta Durvasula |
| Institution: |
Centre for Developmental Disability Studies, University of Sydney |
| Contact: |
seetad@med.usyd.edu.au |
| Completion Date: |
November 2004 |
| Description: |
A literature review on sudden and unexplained death in epilepsy. |
| Report: |
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| Project: |
A review of the research to identify the most effective models of Best Practice in the management of children with Autism Spectrum Disorders |
| Principal Researcher: |
Jacqueline Roberts and Greta Ridley |
| Institution: |
Centre for Developmental Disability Studies, University of Sydney |
| Contact: |
jmroberts@hotmail.com |
| Completion Date: |
April 2004 |
| Description: |
The project reviewed literature relating to the management and treatment of children with autism with the aim to identify the most effective models of best practice. |
| Report: |
Models of Best Practice in the management of children with Autism Spectrum Disorders |
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| Project: |
Identifying isolated carers: contacting carers with unmet needs for information and support |
| Principal Researcher: |
Michael Bittman |
| Institution: |
University of NSW |
| Contact: |
m.bittman@unsw.edu.au |
| Completion Date: |
April 2004 |
| Description: |
Project aimed to identify innovative strategies for identifying carers and their needs and improving their access to information and take-up of appropriate support services. An ARC Linkage Project. |
| Report: |
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| Project: |
Coping with occupational stress when nursing in large residential centres |
| Principal Researcher: |
Catherine Adams |
| Institution: |
University of Newcastle |
| Contact: |
Catherine.Adams@mater.health.nsw.gov.au |
| Completion Date: |
2003 |
| Description: |
The study looked at levels of occupational stress in nursing staff (RN, CNS, NUM) and whether personality type and/or coping style influences the level of stress. |
| Report: |
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| Project: |
Life satisfaction for children with profound and multiple disabilities |
| Principal Researcher: |
Dr Gordon Lyons |
| Institution: |
Macquarie University , Sydney |
| Contact: |
gordon.lyons@mq.edu.au |
| Completion Date: |
December 2003 |
| Description: |
The project investigated the phenomenon of life satisfaction for children with profound multiple disabilities to help improve understanding of how communication partners come to know these children. |
| Report: |
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| Project: |
Service Pathways for Ageing Parent Caregivers |
| Principal Researcher: |
Gwynnyth Llewellyn, Lindsay Gething, Hal Kending, Rosemary Cant |
| Institution: |
University of Sydney |
| Contact: |
www.afdsrc.org |
| Completion Date: |
May 2003 |
| Description: |
Investigated service delivery pathways for ageing parent caregivers. |
| Report: |
Invisible Carers Facing an Uncertain Future |
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| Project: |
Supporting families averting out of home placement of children with disabilities |
| Principal Researcher: |
Gwynnyth Llewellyn |
| Institution: |
University of Sydney |
| Contact: |
www.afdsrc.org |
| Completion Date: |
March 2003 |
| Description: |
The project reviewed wellbeing in families that have children with high support needs, identified factors affecting wellbeing and factors predisposing families to seek out of home placements. |
| Report: |
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| Project: |
Home Maintenance and Modifications Clearinghouse |
| Principal Researcher: |
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| Institution: |
Faculty of Health Sciences, University of Sydney |
| Contact: |
hmminfo@fhs.usyd.edu.au |
| Completion Date: |
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| Description: |
The information clearinghouse gathers, collates, summarises, analyses and disseminates home modification information through the website at http://plan.arch.usyd.edu.au/hmm/hmm_web/default.cfm |
| Report: |
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| Project: |
Enhancing Interaction in Group Homes for Adults with Disabilities |
| Principal Researcher: |
David Butt and Alison Moore |
| Institution: |
Centre for Language in Social Life , Macquarie University |
| Contact: |
amoore@ling.mq.edu.au |
| Completion Date: |
2002 |
| Description: |
The project explored interpersonal interactions between clients, service workers, carers and children with behaviour support needs living in the inner west area group homes, with the view to enhancing patterns of interaction/communication between household residents and their carers. |
| Report: |
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Back to top |
| Project: |
A comparative study of program elements and intervention strategies used to maintain children with a disability safely within the family |
| Principal Researcher: |
Eileen Baldry |
| Institution: |
University of NSW |
| Contact: |
E.Baldry@unsw.edu.au |
| Completion Date: |
October 2002 |
| Description: |
The project investigated the elements and strategies of the Intensive Family Support Options (IFSO) home-based interventions, with the view to determining effective options for supporting families that have a child with a disability. |
| Report: |
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| Project: |
Behavioural and family systems interventions in developmental disabilities: towards a contemporary and integrative approach |
| Principal Researcher: |
Paul Rhodes |
| Institution: |
Department of Psychological Medicine, Children's Hospital, Westmead |
| Contact: |
paulr2@chw.edu.au |
| Completion Date: |
December 2001 |
| Description: |
The project examined ways of integrating systematic therapy principles with traditional behavioural approaches to strengthen the relationship between behavioural interventions and family therapy. The research laid the foundations for a practical working model to assist the behavioural programmer identify and respond to restraints the family may present to effective behaviour intervention. |
| Report: |
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| Project: |
Appropriate community services in NSW for offenders with intellectual disabilities and those at risk of offending |
| Principal Researcher: |
Jim Simpson, Meredith Martin, Jenny Green |
| Institution: |
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| Contact: |
Meredith@martinassociates.com.au |
| Completion Date: |
July 2001 |
| Description: |
The report provides a framework for provision of appropriate community services for people with intellectual disabilities who are in contact with the criminal or juvenile justice system, or at risk of contact. The project focused on accommodation, case management, behavior intervention and related services. |
| Report: |
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| Project: |
Evaluation of stress management training for parents of children with developmental disabilities |
| Principal Researcher: |
Elizabeth Connellan |
| Institution: |
University of Western Sydney |
| Contact: |
econnellan@hotmail.com |
| Completion Date: |
June 2001 |
| Description: |
The project investigated the effectiveness of stress management training for parents. |
| Report: |
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Back to top |
| Project: |
A Journey Backwards in Search of the Invisible Survivors: Child Sexual Assault of Women with an Intellectual Disability |
| Principal Researcher: |
Megan Agnew |
| Institution: |
Macquarie University |
| Contact: |
megan.agnew@dadhc.nsw.gov.au |
| Completion Date: |
April 2000 |
| Description: |
This Study was originally designed to conduct a formative needs assessment focusing on the effects of child sexual assault (CSA) on women with an intellectual disability. Difficulties in accessing the women themselves necessitated interviews with five sexual assault workers. Qualitative methods were used to illuminate the participants' subjective experience, perceptions, meanings and knowledge of the needs of this group of women. The dominant theme that emerged from the transcripts was one of barriers. Thus the emphasis of this study was transformed from a focus on the effects of CSA to a focus on the 'barriers' acting to keep this group of CSA survivors silent and inaccessible to both intervention and research. The results identify and explore three dominant and inter-related barriers/themes operating on three levels: 1) Barriers to disclosure (of CSA) and access (to services) for the women themselves (Individual level) . 2) Barriers to recognition, access and action operating at the systems level. 3) Barriers to awareness and action operating at the societal level. In identifying major barriers, it is hoped that the findings will invite further discussion and exploration from the disability and sexual assault professionals on how 'the barriers' may be broken down. |
| Report: |
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| Project: |
Long term follow-up of former institution residents |
| Principal Researcher: |
Dr Roger Stancliffe |
| Institution: |
Centre for Developmental Disability Studies, University of Sydney |
| Contact: |
rogerst@med.usyd.edu.au |
| Completion Date: |
December 1999 |
| Description: |
The project investigated the long term effects on people with intellectual disabilities who were transferred from institutions to the community. |
| Report: |
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| Project: |
Parents experience of hospital care for their children with developmental disabilities: a pilot study |
| Principal Researcher: |
Penny Kearney |
| Institution: |
School of Nursing, Family & Community Health, University of Western Sydney |
| Contact: |
p.kearney@uws.edu.au |
| Completion Date: |
April 1999 |
| Description: |
The project investigated hospital care experiences for parents of children with developmental disabilities. |
| Report: |
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| Project: |
Western Sydney Intellectual Disability Support Group Oral History Film Project |
| Principal Researcher: |
Jeanette Moss |
| Contact: |
Manager Western Sydney Intellectual Disability Support Group at wsidsg@optusnet.com.au |
| Completion Date: |
1997 |
| Description: |
The project recorded and documented the personal histories of Rydalmere Centre residents that lived in the old Rydalmere Hospital , as well as that of family members associated with the Hospital. The details were presented in a 20 minute film that presented the interplay between history, place and people, and the impact of the transitions on peoples lives. |
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